The Founder and Executive Director of The Jansen's Foundation, Dr. Neena Nizar, is a patient herself and mother to two boys with Jansen’s Metaphyseal Chondrodysplasia (JMC). The foundation is on a mission to find a treatment for JMC, an ultra rare skeletal condition that affects less than 30 patients worldwide. For the last several years, she has worked alongside researchers at Harvard University, the NIH, and the FDA to bring about the first ever treatment for Jansen’s Disease. She collaborates with multiple organizations, writes for publications, and continues to fight for the highest quality of life for her sons and others affected with JMC. For more information, visit: https://www.thejansensfoundation.org.
