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The Jansen's Foundation

The Founder and Executive Director of The Jansen's Foundation, Dr. Neena Nizar, is a patient herself and mother to two boys with Jansen’s Metaphyseal Chondrodysplasia (JMC). The foundation is on a mission to find a treatment for JMC, an ultra rare skeletal condition that affects less than 30 patients worldwide. For the last several years, she has worked alongside researchers at Harvard University, the NIH, and the FDA to bring about the first ever treatment for Jansen’s Disease. She collaborates with multiple organizations, writes for publications, and continues to fight for the highest quality of life for her sons and others affected with JMC. For more information, visit:


Disclaimer: The information contained in this page is provided by the partnering patient organization for informational purposes only.  The 40 Percent Inc. does not warrant its completeness or accuracy, and it should not be construed as an endorsement by The 40 Percent Inc. or relied upon as a basis for your support for the partnering patient organization.  The information is subject to change without notice.

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