Rare diseases have no better advocates than patients and caregivers. In 2015, Elizabeth and Jeff Reynolds’ son was diagnosed with Pearson Syndrome. At the time, there was no treatment, no clinical trial, and no research being conducted. Since then, Elizabeth and Jeff have launched The Champ Foundation, funded some of the most exciting mitochondrial disease research in the world, and advocated for all families affected by Pearson Syndrome. Elizabeth says, “The Champ Foundation’s most rewarding experiences have been encouraging and advocating for other families to forge their own paths forward.”
For more information, visit https://www.thechampfoundation.org.