The Association for Creatine Deficiencies

The Association for Creatine Deficiencies is a young parent-led advocacy organization that provides patient, family, and public education to advocate for early diagnosis of cerebral creatine deficiency syndromes (CCDS) and to advance research for treatments and cures. ACD leaders know they can’t afford to be bystanders in the research process waiting on developments from the medical field. As such, the organization is committed to being an active player in research and fostering a symbiotic collaboration where researchers and parents work together. With three rare diseases under one umbrella, the ACD is leveraging the power of a stronger, united community to drive research. For more information, visit


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