SLC6A1 Connect is a patient organization that was formed out of necessity – their children are sick. Their goal is for their organization not to exist in 5 years because a cure is in place. By that time, they want to have moved on to curing the next rare disease. SLC6A1’s research mindset was formed with that philosophy in mind. They are in search of novel IP solutions to advance research quickly for their impatient patient group, as they can’t give their children publications to stop seizures, help them walk, or even eat.
SLC6A1 is a rare neurological condition in small children that causes seizures, severe movement and speech disorders and intellectual disability. SLC6A1 Connect is a patient advocacy group dedicated to improving the lives of children and families affected by SLC6A1. Their focus is to raise awareness and fundraising to advance scientific research that will ultimately result in a cure. For more information, visit: https://slc6a1connect.org.