Project 8p Foundation is a 501(c)(3) non profit organization established to accelerate the discovery of treatments for chromosome 8p disorders with a translational research program and a standard of care to empower meaningful lives in a unified community today. No one knows a disease better than those who live it every day. Patients’ active involvement is critical for accelerating the development of treatments. This is what drove Bina Shah to launch Project 8p in 2018 after receiving her daughter’s diagnosis of chromosome 8p disorder. Project 8p collaborates with other patient-led advocacy groups to develop the Commission on Novel Technologies for Neurodevelopmental Copy Number Variants (CNVs). The Commission aims to investigate the challenges common to neurodevelopmental CNVs in order to accelerate therapeutic developments.
For more information, visit https://project8p.org.