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NEC Society

The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this devastating neonatal intestinal disease. The NEC Society’s Scientific Advisors are experienced clinicians and researchers focused on combining the patient-family perspective with solutions based on the best available scientific evidence. Families from around the world are fundamental to accelerating the NEC Society’s mission to improve outcomes for the most vulnerable infants at risk of NEC. The NEC Society is a member of the Chan Zuckerberg Initiative's Rare As One Network and has received 3 PCORI Engagement Awards. For more information, visit:


Disclaimer: The information contained in this page is provided by the partnering patient organization for informational purposes only.  The 40 Percent Inc. does not warrant its completeness or accuracy, and it should not be construed as an endorsement by The 40 Percent Inc. or relied upon as a basis for your support for the partnering patient organization.  The information is subject to change without notice.

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