NEC Society

The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this devastating neonatal intestinal disease. The NEC Society’s Scientific Advisors are experienced clinicians and researchers focused on combining the patient-family perspective with solutions based on the best available scientific evidence. Families from around the world are fundamental to accelerating the NEC Society’s mission to improve outcomes for the most vulnerable infants at risk of NEC. The NEC Society is a member of the Chan Zuckerberg Initiative's Rare As One Network and has received 3 PCORI Engagement Awards. For more information, visit: https://necsociety.org.


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