top of page

FOXG1 Research Foundation

About the FOXG1 Research Foundation: Founded in 2017, the FRF is a 501(c) parent-led global organization dedicated to funding science along the path to a cure and therapies for children and adults who are afflicted with the severe, rare, neurodevelopmental genetic disorder called FOXG1 syndrome. FOXG1 syndrome is characterized by severe developmental, cognitive, and physical disabilities, and epilepsy.

For more information, please visit


Disclaimer: The information contained in this page is provided by the partnering patient organization for informational purposes only.  The 40 Percent Inc. does not warrant its completeness or accuracy, and it should not be construed as an endorsement by The 40 Percent Inc. or relied upon as a basis for your support for the partnering patient organization.  The information is subject to change without notice.

bottom of page