Children's Cardiomyopathy Foundation (CCF)

The Children's Cardiomyopathy Foundation (CCF) is actively involved in all aspects of the disease from research and education to awareness, advocacy, and family support. Since CCF's establishment, there has been a four-fold increase in the number of pediatric cardiomyopathy studies supported by the National Institutes of Health. The increase in medical articles and presentations has led to improved evaluation and treatment guidelines for children with cardiomyopathy. The impact of CCF’s work was reviewed in "From Partnership to Progress in the Field of Pediatric Cardiomyopathy," published in Progress in Pediatric Cardiology. The Foundation continues to make an impact on research by:

  • Promoting the Pediatric Cardiomyopathy DNA and Tissue Repository as an available research resource to scientists and clinicians.

  • Offering research grants to promising investigators to better understand the disease, improve treatments and ultimately cure it.

  • Assisting in patient recruitment for research studies and the dissemination of research findings.

  • Sponsoring working groups and research studies in partnership with the Pediatric Cardiomyopathy Registry.

  • Organizing medical conferences to provide a venue for researchers and clinicians from around the world to exchange information on the latest findings and determine research priorities.

For more information, visit: www.childrenscardiomyopathy.org.


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