COMBINED Brain
COMBINEDBrain (Consortium for Outcome Measures and Biomarkers for Neurodevelopmental Disorders) is a non-profit consortium led by patient...
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- Oct 28, 2021
- 1 min
Children's Cardiomyopathy Foundation (CCF)
The Children's Cardiomyopathy Foundation (CCF) is actively involved in all aspects of the disease from research and education to...
- Oct 10, 2021
- 1 min
The DDX3X Foundation
The DDX3X Foundation is a nonprofit organization founded in 2015 to find a cure for DDX3X syndrome. As part of their mission, the...
- Sep 10, 2021
- 1 min
Foundation Fighting Blindness
The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for...
- Sep 6, 2021
- 1 min
SLC6A1 Connect
SLC6A1 Connect is a patient organization that was formed out of necessity – their children are sick. Their goal is for their...
- Sep 6, 2021
- 1 min
IFOPA (Internationa Fibrodysplasia Ossificans Progressiva Association)
The IFOPA is a 501c3 nonprofit organization that provides hope to individuals with FOP and their families through education and support...
- Aug 7, 2021
- 1 min
Texas Rare Alliance
Texas Rare Alliance is devoted to advocacy on behalf of people living with rare diseases, including improved access to treatments and...
- Jul 31, 2021
- 1 min
PSC Partners Seeking a Cure
The mission of PSC Partners Seeking a Cure is to drive research to identify treatments and a cure for primary sclerosing cholangitis...
- Jul 23, 2021
- 1 min
DADA2 Foundation
DADA2 is a recently discovered and extremely rare genetic disease that usually starts in childhood. Since its inception, the DADA2...
- Jul 23, 2021
- 1 min
NEC Society
The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through...
- Jul 20, 2021
- 1 min
Fanconi Anemia Research Fund
The Fanconi Anemia Research Fund (FARF) is the world leader in advancing research for better treatments and a cure for Fanconi anemia...
- Jul 7, 2021
- 1 min
TANGO2 Research Foundation
TANGO2 Research Foundation's mission is to improve the lives of those children and young adults affected by TANGO2 related disease. They...
- Jul 1, 2021
- 1 min
Lymphangiomatosis & Gorham's Disease Alliance
The Lymphangiomatosis & Gorham's Disease Alliance (LGDA) is a nonprofit organization that promotes and funds research that improves the...
- Jun 28, 2021
- 1 min
INADcure Foundation
The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for...
- Jun 28, 2021
- 1 min
LGS Foundation
The LGS Foundation's mission is to improve the lives of individuals affected by Lennox-Gastaut Syndrome (LGS) through research, family...
- Jun 28, 2021
- 1 min
Cure HHT
The mission of Cure HHT is to find a cure for HHT while saving the lives and improving the well-being of individuals and families...
- Jun 27, 2021
- 1 min
Team Telomere
Team Telomere's mission is to provide information and support services to families worldwide affected by Dyskeratosis Congenita and...
- Jun 27, 2021
- 1 min
KIF1A.ORG
KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder and...
- Jun 27, 2021
- 1 min
RUNX1 Research Program
Founded in early 2016, the RUNX1 Research Program (RRP) is a research and advocacy venture committed to funding world-class, innovative...
- Jun 27, 2021
- 1 min
Wiskott-Aldrich Foundation
The Wiskott-Aldrich Foundation is a volunteer run 501(3)c non-profit organization dedicated to: funding research to find better cures...
Disclaimer: The information contained in this page is provided by the partnering patient organization for informational purposes only. The 40 Percent Inc. does not warrant its completeness or accuracy, and it should not be construed as an endorsement by The 40 Percent Inc. or relied upon as a basis for your support for the partnering patient organization. The information is subject to change without notice.
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